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Showing posts from October, 2008

October School Update

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School is still going really well, I think we really made excellent choices when picking our curriculum. Of course we spent quite a bit of time researching our options and really focused on ones that seemed geared towards Gesserine's strengths. Reading : Most of it had been review because she already knew her letter sounds, but since we were starting with a new approach I didn't want to start in the middle. I also wanted to emphasis the sounds making sure Gess said them correctly. This last week though we began working on word blends which was something new. We started with Sa, Se, Si, So, Su. For the first time Gess was listening for more than just the first letter of the word, she had to listen for the first blend. We spent the whole week on just these beginning blends and by the end of the week she was doing pretty good recognizing the proper blend. Now we will begin adding letters to the end of the blend. She is getting good with her worksheets and can do some of th

Gesserine's Heart Surgery

As I previously mentioned Down syndrome is usually accompanied with various medical problems and some can be quite serious. Gesserine was born with a congenital heart defect. In her case the valves in her heart were not working properly and it was allowing the oxygenated and un-oxygenated blood to mix in the heart. At 2 1/2 months of age she had an AV Canal repair done. When she had her open heart surgery the Kansas City Star was doing a piece on her surgeon, Dr. Lofland. While doing this article they followed Gess from her pre-op visit, during her actual surgery all the way to our follow up visit afterwards. There were even full color photos of the surgery itself in the paper! I thought I would share the article for those who might want to learn a little bit more about it. They tell about Gesserine's surgery at the beginning and finish up at the end with a little bit in between. Of course you will learn more about her surgeon than Gess, but he is the man who skillfully re

Life With Down Syndrome

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As you all probably know, my daughter is only 6 (almost 7 years old) so I do not really know what the future holds for her. What I do know is that it offers her more than I ever dreamed it could when we first got the diagnosis that she had Down syndrome. There have been great advances both medically and socially that have allowed a person with Down syndrome to live a fulfilling life. One of those great achievements have been early intervention. It used to just be assumed that a person with Down syndrome could not really learn or adapt well and therefore they were never given an opportunity to do so. They have since learned that not only are they able to learn but sometimes there are medical reasons for some of their delays. For instance part of their speech difficulties are sometimes due to hearing loss and their reading delays actually appear worse than they are when the child suffers from poor vision. Because they now know these facts children with Down syndrome are screened at

What is Down Syndrome?

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Some of you might not know this but October is Down Syndrome Awareness month and at this time support groups all across America will be having Buddy Walks to raise funds to support education, research and advocacy for people who have Down syndrome. Many people do not really know much about Down syndrome. I know that when my daughter was born I certainly did not. My knowledge of DS was limited to what I learned while watching Life Goes On which starred Chris Burke who has DS. Of course these days, people do not even know what that show is, let alone what DS is. All I knew was that people who had Down syndrome had intellectual disabilities (which wasn't how it was referred to at the time). I knew that they were now attending school with their peers, but I knew that it was tough because they were not on the same level as their peers. What I didn't know was that the mental aspect was only one of many conditions that accompany DS. Many people who have Down syndrome often